Show simple item record

dc.contributor.authorLahdenne, Pekka
dc.contributor.authorAalto, Kristiina
dc.contributor.authorRebane, Katariina
dc.contributor.authorVahasalo, Paula
dc.contributor.authorPutto-Laurila, Anne Kristiina
dc.contributor.authorMalin, Merja
dc.contributor.authorKroger, Liisa
dc.contributor.authorSaila, Hanna
dc.contributor.authorConsolaro, Alessandro
dc.contributor.authorBovis, Francesca
dc.contributor.authorRuperto, Nicolino
dc.date.accessioned2018-05-04T10:31:25Z
dc.date.available2018-05-04T10:31:25Z
dc.date.issued2018
dc.identifier.urihttps://erepo.uef.fi/handle/123456789/6576
dc.description.abstractThe Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Finnish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 173 JIA patients (1.2% systemic, 46.2% oligoarticular, 39.9% RF-negative polyarthritis, 12.7% other categories) and 100 healthy children, were enrolled in five paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Finnish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
dc.language.isoEN
dc.publisherSpringer Nature
dc.relation.ispartofseriesRHEUMATOLOGY INTERNATIONAL
dc.relation.urihttp://dx.doi.org/10.1007/s00296-018-3950-3
dc.rightsCC BY http://creativecommons.org/licenses/by/4.0/
dc.subjectjuvenile idiopathic arthritis
dc.subjectdisease status
dc.subjectfunctional ability
dc.subjecthealth-related quality of life
dc.subjectJAMAR
dc.titleThe Finnish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
dc.description.versionpublished version
dc.contributor.departmentSchool of Medicine / Clinical Medicine
uef.solecris.id54191796en
dc.type.publicationTieteelliset aikakauslehtiartikkelit
dc.rights.accessrights© Authors
dc.relation.doi10.1007/s00296-018-3950-3
dc.description.reviewstatuspeerReviewed
dc.format.pagerange179-186
dc.relation.issn0172-8172
dc.relation.issueSupplement 1
dc.relation.volume38
dc.rights.accesslevelopenAccess
dc.type.okmA1
uef.solecris.openaccessOpen access -julkaisukanavassa ilmestynyt julkaisu


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record